The Roadmap of Active Patient Involvement continues with an evolution of relationships more and more focused on creating areas for discussion. This approach serves as a guide to defining needs that may appear hidden but are well-known within the clinical research community.
Patient engagement requires a partnership with multiple stakeholders, first of all, patient associations, to facilitate dialogue centered on an interdisciplinary approach.
In the concept of engagement, it is a must to envision involvement with as many different stakeholders as possible, alongside dedicated communication with patient associations, such as those supported by AIFA. An example to strengthen this commitment to dialogue is a focus on care, emphasizing an interdisciplinary approach – not only in terms of responsibilities but, above all, in terms of experiences and expertise. These elements are fundamental to forging a true alliance.
This institutional incipit highlights the value of health and research, offering effective and compliant solutions tailored to the real world – solutions that cannot be overlooked.
Why is it so important to listen to patients? Because it is always a matter of patient affairs…
Today, Listening 4.0 goes beyond being a compassionate tool; it is a precious opportunity to interpret and encode endpoints often misunderstood as “simple” clinical narratives, which are not always properly addressed. Active listening can become a partner to clinical methodology, a tool to accelerate personalized diagnoses, and an alliance for more effective care.
Listening to patients now carries a dual deontology – both social and scientific.
Thus, Patient affairs become a matter for all healthcare players, governed by a system rooted in codified critical thinking derived from regulatory best practices.
Observing to define boundaries, listening to identify needs, and sharing to mediate are proactive approaches that deepen the binomial of experience and technicism. Therefore, they maintain a balanced, evidence-based perspective grounded in clarity and evidence.
Clinical research should also be supported by the right methodologies, where interactive listening becomes a cornerstone of Patient Affairs.
Source: AIFA Ascolta, a direct line with patient associations.