THINKING PATIENT AFFAIRS

Patient Ability: Redefining the “Care Partnership”.

Di Laura Patrucco - Patient Affairs & Advocacy Lead

 

At the core of healthcare system transformation is a cultural challenge: shifting away from the paternalistic model of medicine towards a new approach to care based on participation, awareness and shared responsibility. It is within this context that the concept of Patient Ability gains significance and strength.

In the realm of patients, Patient Ability represents a vital evolution of empowerment – it goes beyond simply providing information . It’s about enabling patients to take action: to understand, make choices, decide, and collaborate. This competency develops over time and is supported by health literacy, access to digital tools, and transparent relationships with healthcare professionals. 

From this perspective, patients are no longer passive recipients of care but active partners within the system. They need tools to navigate therapeutic options, digital technologies, and complex medical language–provided the system is willing to listen and recognize them as legitimate interlocutors.

Patient Ability, therefore, encompasses all dimensions of the care partnership–from the individual clinician-patient relationship to organizational and institutional levels. It involves creating conditions that enable all “users”, regardless of their educational background or familiarity with healthcare, to participate in an informed and conscious way.

This process demands significant investment in co-design. Patient associations must be involved not only in the listening phase but also in the actual definition of care pathways, informational materials, and digital solutions. Their role evolves from mere representation to structured collaboration, embracing a model of competent advocacy.

For this change to become a reality, we need a system that empowers not only patients, but also professionals, stakeholders, and institutions. Clear language, accessible design, and an inclusive vision are essential. Above all, it requires a genuine willingness to redistribute power and build trust.

Rethinking the care partnership through Patient Ability means recognizing participation as a key driver of quality, equity, and sustainability. This change cannot simply be declared; it must be built, shared, and practiced together–day by day.